Nothing like a good slice!

Oh my little Lucie! She loves her pizza. We started out with cutting a normal slice of pizza in half and then she ate all of that and then she ate almost all of this too! She is getting so big already!

E.E.G...

This morning we went to Mary Greeley Hospital in Ames and RJ had another E.E.G. This is the second one that he has had done since the seizure's started. The first one was right after his grand mall, so they weren't able to monitor him having one during the test. This time we were more lucky you could say. They started off the procedure with having him open and close his eyes a bunch of times. Then they had him breathe deeply trying to hyperventilate for 3 minutes. They then said for him to close his eyes and try to sleep for 20 minutes, and I bet after maybe after 5 minutes he went into a seizure. It was very very strong and he hurt his hands from clutching them together so hard. His jaw is very sore from his mouth being clamped shut and he said his chest feels now like it is being torn apart and it feels like he pulled his shoulder out of socket. My husband has been through so much. I got to sit next to the hospital bed while they did the e.e.g and I was crying when it happend. I didn't know if I could touch him or talk to him in case that might mess up the testing, but once it was almost over the tech pryed his hands apart and said I could hold his hand. It seemed to calm him down a bit, but he was still having the seizure. I HATE to see him go through this. I wiped away my tears and didn't let him see that I had been crying, that would have made it worse.
I know that he isn't going to die but that is my worst fear and what I think about everyday. I am just waiting for that next big horrible thing to happen and have him taken from me. I can't live without him and I don't want to raise our girls without him. He want's so much to just be normal again. I just keep telling him that he will be ok and we will figure this out.... He is scared and so am I.
Hopefully we should hear from the doctor this week on the results and then we will figure out what to do from there.... I am keeping my fingers crossed for an answer or a miracle....

20 months old.........

Can't believe that Lucie is 20 months old. I know it's a couple of days late to post this but we have been pretty busy. Lucie is doing great and loves hanging out at home with her sister and Daddy everyday while Mommy goes to work. She is definetly a daddy's girl. Her new favorite words are "All done" and "No". She is doing pretty good potty training, and working on her ABC's. Her words are starting to be a little more clear. She hates and I mean HATES riding in the shopping cart anywhere we go, which in turn makes it soo much fun for Mommy and Daddy to try and shop. At the end of the day she is very healthy and happy and we are thankful everyday for her!

State Fair Pictures

I have always liked to have old fashioned pictures taken and we have the opportunity to do it at the Iowa State Fair this year. We had a great time and the girls loved the animals. We couldn't stay very long because RJ got pretty tired fast. The weather takes it out of him really easy. We did enjoy our time there. Gracie and I petted the horses and Lucie loved the sheep! Best of all I got my CHEESE ON A STICK! It was delicious!

A little Farkle fun!

We spent this past Saturday evening playing Farkle with Cory and Katie! With RJ not really being able to be outside in the extreme heat and sun right now it really helped pass the time and we were able to have some fun! We grilled out and then played games all night! Our girls Brogan, Gracie and Lucie played their own game of run around the house and scream at the top of their lungs! It was pretty cute, even though their Dads' didn't think so!

By the end of the night the girls were exhausted and we all had a great time!

P.S.

We also got a text saying that our good friends Nick and Kara sold their house in one day after putting it on the market! Congrats to them and we can't wait to visit them at their new and CLOSER house!!!

Happy 8th Anniversary to my hubby!

We made it to year number 8, and still going strong!

RJ update.....

So we went back to the doctor last Thursday morning to find out about changing RJ's medication. He had been experiencing the side effects of Keppra that made him act differently than he normally would. He was cussing like a sailor and was becoming extremely argumentative about everything. He was also becoming very confrontational and was speaking without a "filter" so to speak. After his behavior was increasing dramatically I got ahold of his neurologist and he said that we definetly needed to switch his medication. We have to watch for these signs with every seizure medication since they deal with the brain. Most of them have highly suicidal tendencies so we need to be careful and make sure he is acting ok.
So we started with Dilantin that gave him the severe reaction, to Keppra which made his behavior change negativly, to Trileptal which we are hoping will work out. The bad thing about all of this is that while switching all of these medications he is prone to having more seizures until the medicine gets built up in his bloodstream.
The worst thing is that since his reaction to the dilantin his skin has become highly sensitive to sunlight and heat. He has been ordered by the neurologist to only be outside for 30 minutes at a time and then he needs to be back in the house to cool off completely before he can go back out.
Slowly we are working on things, it's all going to take time......