It's hard to believe how many seizures and complications RJ has had since his car accident a little over a year ago. He has had 2 major "episodes" as the Neurologist likes to call them in the last 2 weeks. Monday morning he had a "episode" that mimicks a grand mal seizure. They don't want to call them "seizures" because that refers to Epilepsy, and they don't believe that he has epilepsy. They say they are related to his P.O.T.S sydrome and they call them "Convulsive Syncope". They are very much as scary and dangerous as an epileptic seizure, but they "hopefully" aren't affecting his brain.
The doctors have decided to add a medication and decrease one that he is already on. It's all a guessing game. They say they just have to find the right combination and dose of medications to stop his symptoms. For now my Mom is back to coming over everyday and watching the girls and just being there in case something should happen with RJ.
I thank god that she was there on Monday morning. She was able to get him off his chair and onto the floor before he really got hurt. As it was, he bruised up his back from the chair when it first started and he was sliding off the chair while the edge of the seat dug into his back.
Keep him in your prayers, we need a miracle............
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