Tuesday, August 2, 2011

RJ update.....

So we went back to the doctor last Thursday morning to find out about changing RJ's medication. He had been experiencing the side effects of Keppra that made him act differently than he normally would. He was cussing like a sailor and was becoming extremely argumentative about everything. He was also becoming very confrontational and was speaking without a "filter" so to speak. After his behavior was increasing dramatically I got ahold of his neurologist and he said that we definetly needed to switch his medication. We have to watch for these signs with every seizure medication since they deal with the brain. Most of them have highly suicidal tendencies so we need to be careful and make sure he is acting ok.
So we started with Dilantin that gave him the severe reaction, to Keppra which made his behavior change negativly, to Trileptal which we are hoping will work out. The bad thing about all of this is that while switching all of these medications he is prone to having more seizures until the medicine gets built up in his bloodstream.
The worst thing is that since his reaction to the dilantin his skin has become highly sensitive to sunlight and heat. He has been ordered by the neurologist to only be outside for 30 minutes at a time and then he needs to be back in the house to cool off completely before he can go back out.
Slowly we are working on things, it's all going to take time......

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